Holistically MS

Join my holistic journey with MS


Leave a comment

After the Tunnel

It’s apparently one hundred days since my last post. Was I informed of this century? No…I just decided to come on here and see if I feel like writing another blog. Or perhaps moving onwards with something else.

The last one hundred days…like MS they have been varied. Like the weather it has been a topical subject one day and not so, another. However…I have stuck at my Wahls Protocol. On May 3rd I started an AIP Leaky Gut diet…for three months. Auto Immune Protocol, by Dr Sarah Ballantyne…to try to improve on my Leaky Gut. My so-called virus this year ended up not being one. I discovered that my joint pains were in fact tendonitis triggered by nutritional deficiencies…caused by stress, infections and relapses. I also, recently, found out that my sore throat this year, exasperated by the aforementioned, is in fact GERD (chronic acid reflux). I then researched how to avoid taking the medicine prescribed and found out that most acid reflux is caused by the stomach having too little acid. Search it and you will see this: http://chriskresser.com/what-everybody-ought-to-know-but-doesnt-about-heartburn-gerd/ I highly recommend it. And what I thought was MS hug was in fact GERD. I may get MS hug sometimes however I now know the reason for food easing the pain. It makes sense. And more so…after removing acidic foods and being in agony, to reintroducing acidic foods…add cider vinegar, eating slower and less in the evening…my pains have cut right down. Hurrah!! Oh, how ten days can spin right around on it’s axis and make you feel that your body is in fact united once again. Incidentally that website material is educational for IBS, Paleo, low carb, sugar free etc…so when I found such a lengthy article which covers lots of my issues, my digestive -throat to toilet- challenges, I  became the student.

So…now my nutrition is starting to get back as a team inline with my body and I am already seeing the turn around; the united body. My exercise levels are back on the agenda. The mediation and yoga are daily and now joined with exercises. I’m also able to take my assistance dog out for wheelchair walks, with some actual walks through the countryside. Helping my mental health also.

So yes, I’m back. Back…and also far far forwards in holistically being healthier; holistically understanding my body and; holistically focussing on the best options which I feel are right for me. 

And so folks…here may endeth my blogs. Thank you for reading about my journey, I wish you great health and happiness.

…I’m off to do the rest of my life now!

  


1 Comment

Silver Linings

It’s so amazing sharing my journey of life with others. The fascination of my recovery is absorbed with open eyes and sometimes open mouthed amazement.

However underneath this silver lining is a challenge with the taste buds; a challenge of the convenience and a challenge of social merging. My partner strives on through with her support for this new lifestyle especially by currently doing some of the diet with me. The protocol logistics are totally satisfying, understanding and suitable. I enjoy the training programme, the lifestyle requirements, the scientific reasons, the knowledge of the rebuild and the results are totally amazing of course. However the food aspect is what sometimes becomes a trial. Yes sure, there are lots of Paleo recipes with totally yummy foods and treats, however adding the low-FODMAP aspect in to the mix often takes the delights out again. I try to believe that the low-FODMAP aspect of my food intake is indeed temporary. For however long I need to endure this tougher level it is still somewhat frustrating for me. I have a sweet tooth and the Wahls Paleo diet as a standalone diet works well fulfilling me with these needs. I have so enjoyed the meals and treats baked for me by loving and generous friends and family.

My successful way to ease my IBS is to cook the permitted low-FODMAP berries. It’s this simple! I eat the low and medium fodmap foods unless I know I have a digestive reaction to anything. After decades of the condition I now have it under control…albeit via a limited diet with specific processes. However this health boost is truly fantastic to live with whilst knowing that my gut is indeed healing.

As autumn sets upon us I find myself focusing more on food when I get cold. Due to lots of weight loss I imagine this winter to be an interesting new element to circumnavigate. Last winter, as my MS was rapidly declining, I was unable to acknowledge the cold until I was extremely cold. So for safety reasons the heating was left on most of the time. The winter before that I seem to recall I just sat in the cold. So…the lessons have been learnt and this winter I feel fortunate enough to be able to at least exercise to keep warm. I’m definitely needing to purchase more clothes. I saw some discounted double layered walking trousers in a well known outdoor shop recently however thought I’d get too warm in them. Hmmm…on second thoughts yes please!

image

After a short amount of frustration with the limitations, I try to focus and recall the amazing distance that my health has come. I find it so mind baffling…in such a movie-style format. No matter how many chocolate treats and savoury cravings and delights I desire I always choose to refocus, regroup and metaphorically slap myself, in order to wade through the world of the majority…and find my world of quality; my world of minority meals; my world of life enhancement and my new world that welcomes me with open arms and a huge energitic smile.

I feel so so fortunate to have the opportunity to rebuild, to restart and to reconnect with my life. The journey worth enduring. The life worth exploring. Our health worthy of so much.


2 Comments

Total Rebuild

I’ve been wondering, for a while now, what to entitle this blog. I want to summarise myself being rebuilt, reprogrammed, rediscovered. Perhaps like a new town being created brick by brick.

So…I’ve been busy with the training programme which has had to change equipment due to my improved health. Yes the wheelchair accessible medical cycle machine kept needing to cool down so I knew it was time to change. Albeit with a proud smile that my fitness and strength is improving more and more. We now have a treadmill which provides me with safe side bars for learning how to walk. My pelvis has started to adjust to this new way of moving, along with my legs building up their muscles for the weight bearing stuff. I also have started cycling out in the real world…quiet lanes and off road. The latter was taking my MS symptoms out of their comfort zone, along with my sensory processing too. However this was fun and really began to help me become distracted from fear of a new unknown life. Yep…as weird as this may sound to some, to others it may make sense. I’ve spent nearly all of my life with medical issues and am fortunate for this change…however long it will last. I still use my wheelchair for going out – for safety, distance and whilst having to process all sorts. I recently purchased a rollator, after tons of research for aesthetic and practical reasons. So far I’ve used it twice.

The food situation has been a pain in the arse for me and my IBS has been challenged so much due to many new food alternatives. My IBS had been increasing in symptoms over the years and then it improved when I went on the Wahls Protocol. Then something was consumed which knocked my digestive system…my ultra sensitive gut started a ropey journey. I tried a low-FODMAP diet for the recommended six weeks which helped. Although my taste buds and enjoyment for food had a different view. And now…I’m back on the extra diet and this time eliminating almond milk too. I do have peaks and troughs with attitude to tolerating the absent tastes…I’m human. Anyways…today I’m fine so we’ll move on now!

My weight loss has been an interesting journey…a subject of which I have not really thought about until spring time this year when I began to change shape. With the results of double diet, I’m frequently in the charity shops rebuilding a wardrobe in a smaller size. It’s so weird looking in the mirror and learning to recognise my [new] self, however it is a lovely bonus on top of the long list of wonderful changes.

Wow…life is becoming life…a new one that feels so so foreign to me –  overwhelming and also hugely fantastic! I’ve just started volunteering out in the real world, away from virtual work. It’s great. I feel like I am living in a surreal world. Perhaps a movie can be made…any takers?!!

image

I love this photo and it says so much about how I feel…as I start to socialise, feel free, awaken and feel ready to enjoy this new life which is the best present to ever ever have.


Leave a comment

The Highway Merger

Yesterday I walked through a supermarket. It was amazing on so many levels. I had a stick and placed it in the trolley and leant on the trolley. As I was going down the aisles I had to process movement of myself and others whilst looking for food items, meanwhile adjust to noises and food at a different height to normal, for me. After many many years it was a really new experience that people just wandered passed me – I blended in. Gone were the wide berths; gone were the apologies; gone were the looks. My aim was accomplished however my processing ability will take some time to adjusting to steering and avoiding people whilst relying on my legs. The venture sure was an amazing feeling. The extra add-on bonus of standing is that I feel tall. I am in reality far from it, however it’s all relative. The food was different at standing level too…less brightly coloured items for attracting children.

Today I went to view a mobility scooter…after much research. I test drove it. I was the first to use it even though the owners had purchased it a year ago for an elderly relative. Anyways, as agreed we went away to discuss it and how I felt. I felt weird – although the freedom it will give me to steer to a shop and walk inside – it felt like a reliance on a motor (I use to rely on my powerchair); a dependence and the concept of sitting there steering again was unsettling for me. These days I have enough energy to power myself in the manual wheelchair for quite some distance; I have enough energy to do my training programme every weekday; I have enough energy to walk about where there is a small amount of processing required. So I realised that I wish to skip the step of a powered scooter. I’m off to research for an alternative method to get around town etc. It may be to lock up the wheelchair in town (probably too much of a wierd concept for others); try a handcycle; try a small-wheeled bicycle or a foldup one for the car; or a go-cart. I wonder if there is such a device as a manual mobility scooter aka adult size kids pedal car!

Recently I moved up a level with confidence and cognition. I was spending time with friends travelling on buses and trains; in cities and in their two storey house. I was thinking for myself; speaking up for myself; observing busy environments and becoming a part of them. I then embarked on some solo town and city trips. Learning to communicate with strangers; learning to find my way; learning to be independent.

Happy times…finding my self.

Recently I looked through the Do It Volunteering Website to see what voluntary work is available either virtually or in a local working environment. Over time my confidence and trust in my new found health will improve. However for now I feel comfier aiming for some virtual/home volunteering. On top of this, next month I am returning to the voluntary centre where I use to volunteer many years ago. I’m happy going there as they know my whole story, my ability and I’m part of the team…so I can be flexible, dependent on how I feel.

image

Transitioning…in whichever way…takes time, acceptance and most of all patience. Also requiring self allowance and flexibility.

A counsellor I saw when I was misinformed about my diagnosis use to say to me: Choice Is Control. This has helped me through many challenges. I chose to try The Wahls Protocol as a tool to try to stand up, to be out of bed, to ease my digestion and to think with a bit of clarity. I got a whole lot more…


Leave a comment

Freedom in the Lightbulb

lightbulb freedom

There is so much joy in these words I am about to type. There is so much appreciation and discovery; such excitement and relief.

During the first half of February I found myself positive yet with frustration; realistic yet worn out. For I felt like a sitting duck…waiting waiting waiting. When will the time come for my MS to improve? I was spending half the day in bed and the other half getting through the hours as best I can. My frustration was over my dependence on others…those medics carrying out trials for Secondary Progressive MS and the realisation I may have years until a drug may ease my life.

And then words and articles caught my eye…my mind slightly baffled and my heart feeling lighter. I have been on many diets to alleviate my conditions however this article was written with science. Science that leapt out to me. Science that made sense. Science that my logical mind liked. I started to read about the Paleo diet. There is so much about it at the moment, since the book release of The Paleo Approach by Dr Sarah Ballantyne, and then the book release of The Wahls Protocol by Dr Terry Wahls. I came across her TEDx seminar a couple of years ago – the potential of our mitochondria. When you have so many questions over an illness you find yourself dipping in and out of answers and trying avenues and questioning others. However for me now, the time was here.

It was mid February. I began the Paleo diet in a relaxed manner so to help with the lifestyle changes I was to incorporate. I needed to be relaxed in order to overcome previous stresses with other dietary restrictions.

One afternoon, after three days of changing my eating habits and relaxing more, my mind awoke and I got things done with clarity. A lightbulb had switched on. It was so amazing. I cross-examined this and then carried on with my week to see how things develop or alter.

After one week, I tightened the dietary requirements to follow the basics of The Wahls Protocol. I continued to read The Paleo Approach. The following few weeks began to turn my life around. Honestly. It was a pure awakening to my body. My cognition clearing, energy increasing, happiness growing, moods mellowing, memory improving. The more that this occurred the more that it fueled me. And still does.

And now…as I am about to enter week six I feel so elated with my new lease of life. I’ve just spent a week of having mornings…awake…up and about. Wow – the days are full of hours – it’s so amazing. Sure, I still see some of that modern convenience food and think how lovely it will be to have some – however this new protocol is the best motivation there is. Awake. Life. This last week I have been able to do gentle leg exercises and still have the energy for daily tasks. This weekend I have been able to stand up. Today I was freed to another level – my legs got me upright…on their own.

I feel so new and reborn. I feel that I have chances and I am experiencing these. I have been able to accomplish things that were laying dormant.

I am back…I am awake…I am coming back into my own life. I have such enormous thanks to the aforementioned doctors and their learnings, with a special thanks to all the experiments Dr Terry Wahls carried out to make sure that her protocol will provide the cells with the nutrients that they need to heal. I’ve got the easy job.

See the title of my blog site – the website address? My deep internal belief is coming true. I use to believe and say  “my body got me into this – my body will get me out of it”. I feel as I am travelling. I am discovering just how amazing the human body is.

It’s time for a revolution – for doctors to prescribe nutrients – a grocery list for medicine; for autoimmune dis-eases to diminish; for millions of people to feel good again.

ducks taking off

What a lush new light this is. I am so overwhelmed by the outcome and the speed of which my body has welcomed nutrition, lifestyle alterations and trust. The confidence in my body, in my future…and in my present moment.

  • I believe in myself.
  • I believe in my health.
  • I believe in my recovery…holistically…as one.