Holistically MS

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One Year of Walking

Well…I’ve just celebrated one year of walking. One year of being out of the wheelchair.

During the early months of the year I increased my exercise routine. You may find some of the following info interesting and hopefully useful:

I exercise daily for about 45mins first thing…with 1.4kg ankle weights on. This goes like this: stretches, yoga interspersed, lying down limb stretches (my take on lying down aerobics stretching, instead of swimming), upside down cycling, meditation (5 mins), jogging (5 mins on the spot), dumbbell weight (1.1kg*) exercises, stationary bike (2km full on). A dog walk for 1-2hrs in the daytime. Then 30 mins meditation in the afternoon.

In the mornings, after I’ve cooled down from my workout, I do some cognitive exercises recommended from a MS article; the Einstein Brain Trainer. At first I was concerned about thinking against the clock, however I’ve gradually improved and also learned of where my weaknesses lie and are improving. It’s a self competition where I also learn to accept blips from outside influences and how this affects my cognition.

My mindfulness course went well, despite some enormous stresses occurring at the time. This improved my meditations also. So I tweaked my meditation to going through each part of my body, whilst focussing on the breathing/counting. I was using an affirmation from George’s book “Let whatever is happening be okay” and sometimes say this in my mind – however sometimes that makes me look for an issue!

Last week I also saw the neurologist. I’m in a new area so needed to check-in with my new local team. The neuro went through the physical examination and I passed it all with flying colours. He was genuinely amazed at my nerve and muscle responses and when doing the muscle responses he was uber amazed…I grinned whilst saying that I do weights. Grins all round. He went on to say something along the lines of other doctors would be unlikely to tell that I’ve got MS. Can you imagine how mind blowing this all was for me? Remember that I’ve had MS for 28.5 years with a late diagnosis, then retracted for 8 yrs (whereby medics questioned my psychiatric ability) and then diagnosed again – so I’ve been through the mill. And now I’m not seeing a neuro unless there is a need!

Just remember…blah blah blah…we are all unique and have MS affecting us uniquely. However also remember to keep on the OMS, keep exercising, keep meditating, keep knowing that all improvements are improvements.¬†


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Jumping for Joy

* dumbell weight increased to 2kg on 28th November. After one week this increase in weights became easier. Within two weeks it gave me a great feeling.

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Back On Track

Hi everyone…well I’ve partly been avoiding blogging fully for the last few months as I had a flare-up of MS. This is primarily due to overdoing activities without needed adjustment and rest. A lot of cognition was needed and thus depleted. My trip to Wales left me exhausted however I was engulfed in the new life with an assistance dog and all that this involves.

I’m pleased to report that after my symptoms increasing, I reconnected with yoga, meditation and begun some mindfulness exercises. Along with increases my intake of valuable Wahls Protocol foods I was then able to work better with my cognition, meanwhile my new assistance dog was working better with me. So all in all this led to good things and the ability to get my physical fitness heading towards a healthier path.

So yes, I am getting back on track. A valuable lesson has been learnt that although I can minimise the MS within me, it is still there backstage. My focuses now are to recover and rebuild from the previous few months of challenging work. I’m so delighted that I’ve turned my health back around…and immensely relieved. I shall soon be visiting my neurologist, after avoiding the medics for a couple years.

The recent mindfulness introduction and awareness had a really profound and insightful effect on my outlook of who I am as a person with a disability. I read a sentence that woke me up…real me vs ideal me. Quite simple, yet so revealing. I realised that in my mind my disability was stopping me from being the ideal me. However to my amazement I learnt that my vision of the ideal me was so far fetched and imaginary…very likely to be unachievable even if I was able bodied. The power of the mind! The other exercise that hit me with immense relief and happiness was to discover all the things I can do now as a disabled person that I was unable to do before. The little things like wear the clothes I want, listen to music or whatever I chose, be home to receive phone calls or deliveries, spend time with my animals, explore hobbies…the list went on. My whole inner self belief turned such a corner that I felt I was getting to know and show myself. I felt alive and lit up like a sunset or log fire…roaring with energy and new self passion.

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