Holistically MS

Join my holistic journey with MS


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Silver Linings

It’s so amazing sharing my journey of life with others. The fascination of my recovery is absorbed with open eyes and sometimes open mouthed amazement.

However underneath this silver lining is a challenge with the taste buds; a challenge of the convenience and a challenge of social merging. My partner strives on through with her support for this new lifestyle especially by currently doing some of the diet with me. The protocol logistics are totally satisfying, understanding and suitable. I enjoy the training programme, the lifestyle requirements, the scientific reasons, the knowledge of the rebuild and the results are totally amazing of course. However the food aspect is what sometimes becomes a trial. Yes sure, there are lots of Paleo recipes with totally yummy foods and treats, however adding the low-FODMAP aspect in to the mix often takes the delights out again. I try to believe that the low-FODMAP aspect of my food intake is indeed temporary. For however long I need to endure this tougher level it is still somewhat frustrating for me. I have a sweet tooth and the Wahls Paleo diet as a standalone diet works well fulfilling me with these needs. I have so enjoyed the meals and treats baked for me by loving and generous friends and family.

My successful way to ease my IBS is to cook the permitted low-FODMAP berries. It’s this simple! I eat the low and medium fodmap foods unless I know I have a digestive reaction to anything. After decades of the condition I now have it under control…albeit via a limited diet with specific processes. However this health boost is truly fantastic to live with whilst knowing that my gut is indeed healing.

As autumn sets upon us I find myself focusing more on food when I get cold. Due to lots of weight loss I imagine this winter to be an interesting new element to circumnavigate. Last winter, as my MS was rapidly declining, I was unable to acknowledge the cold until I was extremely cold. So for safety reasons the heating was left on most of the time. The winter before that I seem to recall I just sat in the cold. So…the lessons have been learnt and this winter I feel fortunate enough to be able to at least exercise to keep warm. I’m definitely needing to purchase more clothes. I saw some discounted double layered walking trousers in a well known outdoor shop recently however thought I’d get too warm in them. Hmmm…on second thoughts yes please!

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After a short amount of frustration with the limitations, I try to focus and recall the amazing distance that my health has come. I find it so mind baffling…in such a movie-style format. No matter how many chocolate treats and savoury cravings and delights I desire I always choose to refocus, regroup and metaphorically slap myself, in order to wade through the world of the majority…and find my world of quality; my world of minority meals; my world of life enhancement and my new world that welcomes me with open arms and a huge energitic smile.

I feel so so fortunate to have the opportunity to rebuild, to restart and to reconnect with my life. The journey worth enduring. The life worth exploring. Our health worthy of so much.


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Total Rebuild

I’ve been wondering, for a while now, what to entitle this blog. I want to summarise myself being rebuilt, reprogrammed, rediscovered. Perhaps like a new town being created brick by brick.

So…I’ve been busy with the training programme which has had to change equipment due to my improved health. Yes the wheelchair accessible medical cycle machine kept needing to cool down so I knew it was time to change. Albeit with a proud smile that my fitness and strength is improving more and more. We now have a treadmill which provides me with safe side bars for learning how to walk. My pelvis has started to adjust to this new way of moving, along with my legs building up their muscles for the weight bearing stuff. I also have started cycling out in the real world…quiet lanes and off road. The latter was taking my MS symptoms out of their comfort zone, along with my sensory processing too. However this was fun and really began to help me become distracted from fear of a new unknown life. Yep…as weird as this may sound to some, to others it may make sense. I’ve spent nearly all of my life with medical issues and am fortunate for this change…however long it will last. I still use my wheelchair for going out – for safety, distance and whilst having to process all sorts. I recently purchased a rollator, after tons of research for aesthetic and practical reasons. So far I’ve used it twice.

The food situation has been a pain in the arse for me and my IBS has been challenged so much due to many new food alternatives. My IBS had been increasing in symptoms over the years and then it improved when I went on the Wahls Protocol. Then something was consumed which knocked my digestive system…my ultra sensitive gut started a ropey journey. I tried a low-FODMAP diet for the recommended six weeks which helped. Although my taste buds and enjoyment for food had a different view. And now…I’m back on the extra diet and this time eliminating almond milk too. I do have peaks and troughs with attitude to tolerating the absent tastes…I’m human. Anyways…today I’m fine so we’ll move on now!

My weight loss has been an interesting journey…a subject of which I have not really thought about until spring time this year when I began to change shape. With the results of double diet, I’m frequently in the charity shops rebuilding a wardrobe in a smaller size. It’s so weird looking in the mirror and learning to recognise my [new] self, however it is a lovely bonus on top of the long list of wonderful changes.

Wow…life is becoming life…a new one that feels so so foreign to me –¬† overwhelming and also hugely fantastic! I’ve just started volunteering out in the real world, away from virtual work. It’s great. I feel like I am living in a surreal world. Perhaps a movie can be made…any takers?!!

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I love this photo and it says so much about how I feel…as I start to socialise, feel free, awaken and feel ready to enjoy this new life which is the best present to ever ever have.