Holistically MS

Join my holistic journey with MS


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Back On Track

Hi everyone…well I’ve partly been avoiding blogging fully for the last few months as I had a flare-up of MS. This is primarily due to overdoing activities without needed adjustment and rest. A lot of cognition was needed and thus depleted. My trip to Wales left me exhausted however I was engulfed in the new life with an assistance dog and all that this involves.

I’m pleased to report that after my symptoms increasing, I reconnected with yoga, meditation and begun some mindfulness exercises. Along with increases my intake of valuable Wahls Protocol foods I was then able to work better with my cognition, meanwhile my new assistance dog was working better with me. So all in all this led to good things and the ability to get my physical fitness heading towards a healthier path.

So yes, I am getting back on track. A valuable lesson has been learnt that although I can minimise the MS within me, it is still there backstage. My focuses now are to recover and rebuild from the previous few months of challenging work. I’m so delighted that I’ve turned my health back around…and immensely relieved. I shall soon be visiting my neurologist, after avoiding the medics for a couple years.

The recent mindfulness introduction and awareness had a really profound and insightful effect on my outlook of who I am as a person with a disability. I read a sentence that woke me up…real me vs ideal me. Quite simple, yet so revealing. I realised that in my mind my disability was stopping me from being the ideal me. However to my amazement I learnt that my vision of the ideal me was so far fetched and imaginary…very likely to be unachievable even if I was able bodied. The power of the mind! The other exercise that hit me with immense relief and happiness was to discover all the things I can do now as a disabled person that I was unable to do before. The little things like wear the clothes I want, listen to music or whatever I chose, be home to receive phone calls or deliveries, spend time with my animals, explore hobbies…the list went on. My whole inner self belief turned such a corner that I felt I was getting to know and show myself. I felt alive and lit up like a sunset or log fire…roaring with energy and new self passion.

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Silver Linings

It’s so amazing sharing my journey of life with others. The fascination of my recovery is absorbed with open eyes and sometimes open mouthed amazement.

However underneath this silver lining is a challenge with the taste buds; a challenge of the convenience and a challenge of social merging. My partner strives on through with her support for this new lifestyle especially by currently doing some of the diet with me. The protocol logistics are totally satisfying, understanding and suitable. I enjoy the training programme, the lifestyle requirements, the scientific reasons, the knowledge of the rebuild and the results are totally amazing of course. However the food aspect is what sometimes becomes a trial. Yes sure, there are lots of Paleo recipes with totally yummy foods and treats, however adding the low-FODMAP aspect in to the mix often takes the delights out again. I try to believe that the low-FODMAP aspect of my food intake is indeed temporary. For however long I need to endure this tougher level it is still somewhat frustrating for me. I have a sweet tooth and the Wahls Paleo diet as a standalone diet works well fulfilling me with these needs. I have so enjoyed the meals and treats baked for me by loving and generous friends and family.

My successful way to ease my IBS is to cook the permitted low-FODMAP berries. It’s this simple! I eat the low and medium fodmap foods unless I know I have a digestive reaction to anything. After decades of the condition I now have it under control…albeit via a limited diet with specific processes. However this health boost is truly fantastic to live with whilst knowing that my gut is indeed healing.

As autumn sets upon us I find myself focusing more on food when I get cold. Due to lots of weight loss I imagine this winter to be an interesting new element to circumnavigate. Last winter, as my MS was rapidly declining, I was unable to acknowledge the cold until I was extremely cold. So for safety reasons the heating was left on most of the time. The winter before that I seem to recall I just sat in the cold. So…the lessons have been learnt and this winter I feel fortunate enough to be able to at least exercise to keep warm. I’m definitely needing to purchase more clothes. I saw some discounted double layered walking trousers in a well known outdoor shop recently however thought I’d get too warm in them. Hmmm…on second thoughts yes please!

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After a short amount of frustration with the limitations, I try to focus and recall the amazing distance that my health has come. I find it so mind baffling…in such a movie-style format. No matter how many chocolate treats and savoury cravings and delights I desire I always choose to refocus, regroup and metaphorically slap myself, in order to wade through the world of the majority…and find my world of quality; my world of minority meals; my world of life enhancement and my new world that welcomes me with open arms and a huge energitic smile.

I feel so so fortunate to have the opportunity to rebuild, to restart and to reconnect with my life. The journey worth enduring. The life worth exploring. Our health worthy of so much.


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Total Rebuild

I’ve been wondering, for a while now, what to entitle this blog. I want to summarise myself being rebuilt, reprogrammed, rediscovered. Perhaps like a new town being created brick by brick.

So…I’ve been busy with the training programme which has had to change equipment due to my improved health. Yes the wheelchair accessible medical cycle machine kept needing to cool down so I knew it was time to change. Albeit with a proud smile that my fitness and strength is improving more and more. We now have a treadmill which provides me with safe side bars for learning how to walk. My pelvis has started to adjust to this new way of moving, along with my legs building up their muscles for the weight bearing stuff. I also have started cycling out in the real world…quiet lanes and off road. The latter was taking my MS symptoms out of their comfort zone, along with my sensory processing too. However this was fun and really began to help me become distracted from fear of a new unknown life. Yep…as weird as this may sound to some, to others it may make sense. I’ve spent nearly all of my life with medical issues and am fortunate for this change…however long it will last. I still use my wheelchair for going out – for safety, distance and whilst having to process all sorts. I recently purchased a rollator, after tons of research for aesthetic and practical reasons. So far I’ve used it twice.

The food situation has been a pain in the arse for me and my IBS has been challenged so much due to many new food alternatives. My IBS had been increasing in symptoms over the years and then it improved when I went on the Wahls Protocol. Then something was consumed which knocked my digestive system…my ultra sensitive gut started a ropey journey. I tried a low-FODMAP diet for the recommended six weeks which helped. Although my taste buds and enjoyment for food had a different view. And now…I’m back on the extra diet and this time eliminating almond milk too. I do have peaks and troughs with attitude to tolerating the absent tastes…I’m human. Anyways…today I’m fine so we’ll move on now!

My weight loss has been an interesting journey…a subject of which I have not really thought about until spring time this year when I began to change shape. With the results of double diet, I’m frequently in the charity shops rebuilding a wardrobe in a smaller size. It’s so weird looking in the mirror and learning to recognise my [new] self, however it is a lovely bonus on top of the long list of wonderful changes.

Wow…life is becoming life…a new one that feels so so foreign to me –  overwhelming and also hugely fantastic! I’ve just started volunteering out in the real world, away from virtual work. It’s great. I feel like I am living in a surreal world. Perhaps a movie can be made…any takers?!!

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I love this photo and it says so much about how I feel…as I start to socialise, feel free, awaken and feel ready to enjoy this new life which is the best present to ever ever have.


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Freedom in the Lightbulb

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There is so much joy in these words I am about to type. There is so much appreciation and discovery; such excitement and relief.

During the first half of February I found myself positive yet with frustration; realistic yet worn out. For I felt like a sitting duck…waiting waiting waiting. When will the time come for my MS to improve? I was spending half the day in bed and the other half getting through the hours as best I can. My frustration was over my dependence on others…those medics carrying out trials for Secondary Progressive MS and the realisation I may have years until a drug may ease my life.

And then words and articles caught my eye…my mind slightly baffled and my heart feeling lighter. I have been on many diets to alleviate my conditions however this article was written with science. Science that leapt out to me. Science that made sense. Science that my logical mind liked. I started to read about the Paleo diet. There is so much about it at the moment, since the book release of The Paleo Approach by Dr Sarah Ballantyne, and then the book release of The Wahls Protocol by Dr Terry Wahls. I came across her TEDx seminar a couple of years ago – the potential of our mitochondria. When you have so many questions over an illness you find yourself dipping in and out of answers and trying avenues and questioning others. However for me now, the time was here.

It was mid February. I began the Paleo diet in a relaxed manner so to help with the lifestyle changes I was to incorporate. I needed to be relaxed in order to overcome previous stresses with other dietary restrictions.

One afternoon, after three days of changing my eating habits and relaxing more, my mind awoke and I got things done with clarity. A lightbulb had switched on. It was so amazing. I cross-examined this and then carried on with my week to see how things develop or alter.

After one week, I tightened the dietary requirements to follow the basics of The Wahls Protocol. I continued to read The Paleo Approach. The following few weeks began to turn my life around. Honestly. It was a pure awakening to my body. My cognition clearing, energy increasing, happiness growing, moods mellowing, memory improving. The more that this occurred the more that it fueled me. And still does.

And now…as I am about to enter week six I feel so elated with my new lease of life. I’ve just spent a week of having mornings…awake…up and about. Wow – the days are full of hours – it’s so amazing. Sure, I still see some of that modern convenience food and think how lovely it will be to have some – however this new protocol is the best motivation there is. Awake. Life. This last week I have been able to do gentle leg exercises and still have the energy for daily tasks. This weekend I have been able to stand up. Today I was freed to another level – my legs got me upright…on their own.

I feel so new and reborn. I feel that I have chances and I am experiencing these. I have been able to accomplish things that were laying dormant.

I am back…I am awake…I am coming back into my own life. I have such enormous thanks to the aforementioned doctors and their learnings, with a special thanks to all the experiments Dr Terry Wahls carried out to make sure that her protocol will provide the cells with the nutrients that they need to heal. I’ve got the easy job.

See the title of my blog site – the website address? My deep internal belief is coming true. I use to believe and say  “my body got me into this – my body will get me out of it”. I feel as I am travelling. I am discovering just how amazing the human body is.

It’s time for a revolution – for doctors to prescribe nutrients – a grocery list for medicine; for autoimmune dis-eases to diminish; for millions of people to feel good again.

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What a lush new light this is. I am so overwhelmed by the outcome and the speed of which my body has welcomed nutrition, lifestyle alterations and trust. The confidence in my body, in my future…and in my present moment.

  • I believe in myself.
  • I believe in my health.
  • I believe in my recovery…holistically…as one.